This paper is in the following e-collection/theme issue:

Reviews in Digital Mental Health (289) Participatory Medicine & E-Patients (873) User Needs and Competencies (456) Participatory Design and Participatory Research (418) Users' and Patients' Needs for Mental Health Services (502) Innovations in Mental Health Systems (484)

Published on in Vol 10 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/46590, first published .
The Involvement of Service Users and People With Lived Experience in Mental Health Care Innovation Through Design: Systematic Review

The Involvement of Service Users and People With Lived Experience in Mental Health Care Innovation Through Design: Systematic Review

The Involvement of Service Users and People With Lived Experience in Mental Health Care Innovation Through Design: Systematic Review

Authors of this article:

Lars Veldmeijer1, 2 Author Orcid Image ;   Gijs Terlouw2 Author Orcid Image ;   Jim Van Os1 Author Orcid Image ;   Olga Van Dijk3 Author Orcid Image ;   Job Van 't Veer2 Author Orcid Image ;   Nynke Boonstra1, 2, 4 Author Orcid Image
Article Authors Cited by (31) Tweetations (4) Metrics

Journals

  1. Veldmeijer L, Terlouw G, Van Os J, Van 't Veer J, Boonstra N. The Frequency of Design Studies Targeting People With Psychotic Symptoms and Features in Mental Health Care Innovation: Secondary Analysis of a Systematic Review. JMIR Mental Health 2024;11:e54202 View
  2. Marshall P, Barbrook J, Collins G, Foster S, Glossop Z, Inkster C, Jebb P, Johnston R, Jones S, Khan H, Lodge C, Machin K, Michalak E, Powell S, Russell S, Rycroft-Malone J, Slade M, Whittaker L, Lobban F. Designing a Library of Lived Experience for Mental Health: integrated realist synthesis and experience-based co-design study in UK mental health services. BMJ Open 2024;14(1):e081188 View
  3. Sizemore A, Kelly B, Breaux C, Holliday S. Equity considerations in mental health diversion in California. Journal of Offender Rehabilitation 2024;63(3):131 View
  4. Brotherdale R, Berry K, Branitsky A, Bucci S. Co-producing digital mental health interventions: A systematic review. DIGITAL HEALTH 2024;10 View
  5. Adams J. Examining Ethical and Social Implications of Digital Mental Health Technologies Through Expert Interviews and Sociotechnical Systems Theory. Digital Society 2024;3(2) View
  6. De Ruysscher C, Magerman J, Goethals I, Chantry M, Sinclair D, Delespaul P, De Maeyer J, Nicaise P, Vanderplasschen W. Islands in the stream: a qualitative study on the accessibility of mental health care for persons with substance use disorders in Belgium. Frontiers in Psychiatry 2024;15 View
  7. Veldmeijer L, Terlouw G, van Os J, te Meerman S, van ‘t Veer J, Boonstra N. From diagnosis to dialogue – reconsidering the DSM as a conversation piece in mental health care: a hypothesis and theory. Frontiers in Psychiatry 2024;15 View
  8. Nica R. Improving mechanisms of involvement of people with lived experience in decision‐making processes. World Psychiatry 2024;23(3):398 View
  9. Forrester‐Bowling T, Lucas J, Brown A, Bennetts S, Carolin R, Hayward J, Scott D, Peeters A, McLure J. Adapting Group Model Building for Mental Healthcare: A Participatory Co‐Design Approach. International Journal of Mental Health Nursing 2025;34(1) View
  10. Au Yeung T, Hui M, Kung K. An Empirical Qualitative Investigation into Psychosexual Development in and Sex Education for Autistic Youth: Insights from Autistic and Non-Autistic Young Adults. Journal of Autism and Developmental Disorders 2024 View
  11. Alpeza F, Avermark H, Gobbo E, Herzig van Wees S. How has co-design been used to address vaccine hesitancy globally? A systematic review. Human Vaccines & Immunotherapeutics 2024;20(1) View
  12. Dings R, Strijbos D. Being in a position to know: attuned responsiveness as the hallmark of experiential knowledge and expertise in mental healthcare. Frontiers in Psychiatry 2025;15 View
  13. Madziva C, Njoroge K, Chinouya M. Clay ingestion adverse health experiences during pregnancy among African women in London. British Journal of Midwifery 2025;33(3):134 View
  14. Horstkötter D, Kanne M, Karbouniaris S, Lazrak N, Bulgheroni M, Sheltawy E, Giani L, La Gamba M, Ruiz Pujadas E, Camacho M, Royle F, Baggetto I, Gülöksüz S, Rutten B, van Os J. Decision-making on an AI-supported youth mental health app: A multilogue among ethicists, social scientists, AI-researchers, biomedical engineers, young experiential experts, and psychiatrists. Journal of Responsible Technology 2025;22:100119 View
  15. Geluk E, Lenstra R, Cambré B, Van den Broeck A. Designing a Multi-Stakeholder Intervention for Return to Work After Burnout. A Participatory Approach. Journal of Occupational Rehabilitation 2025 View
  16. Gulliver A, Heffernan C, Mercieca P, McMahon J, Batterham P. Co-designing a brief online mental health program to support help seeking in workplaces. Design for Health 2025;9(2):216 View
  17. Raeburn T, Chang C, Penny J, Ireland M. The Significance of Lived Experience in the Work of Social Reformer and Nursing Pioneer Elizabeth Fry (1780–1845). International Journal of Mental Health Nursing 2025;34(3) View
  18. Torkington C, Anderson A, Millar C. Investigating community mental health services’ responses to racial trauma during the 2024 UK far-right riots. BMC Health Services Research 2025;25(1) View
  19. Fleming W, Coutts A, Pochard D, Trivedi D, Sanderson K. Human-Centered Design and Digital Transformation of Mental Health Services. JMIR Human Factors 2025;12:e66040 View
  20. Küçükaksu M, Jansen L, Hoekstra T, Helmig S, Adriaanse M, van Meijel B. Clearing the smoke: experiences of patients and professionals during a one-year smoking cessation intervention in ambulatory mental healthcare – a qualitative study. Substance Abuse Treatment, Prevention, and Policy 2025;20(1) View
  21. Rolduà-Ros J, Moreno-Poyato A, Coelho J, Nogueira C, Sequeira C, Teixeira S, Usall J, Lluch-Canut M. Exploring an Intervention to Enhance Positive Mental Health in People with First-Episode Psychosis: A Qualitative Study from the Perspective of Mental Health Professionals. Healthcare 2025;13(15):1834 View
  22. van den Berg L, van Beukering M, A. de Leeuw R, Peute L. Exploring the Influence of End-Users’ Lived Experience on Usability Problem Detection: A Case Study of the Pregnancy and Work App. International Journal of Human–Computer Interaction 2025:1 View
  23. Veldmeijer L, van Os J. “They talk the talk but don’t walk the walk”. Introducing the concept of participatory assimilation in mental health care innovation. Psychosis 2025:1 View
  24. Brubacher L, Rajeswaran K, McDonald K, Keczem S, Dodd W. Engaging People With Lived Experience in Mental Health Service Co-design in Ontario, Canada. Journal of Prevention and Health Promotion 2025 View
  25. Parrott W, Jackson M, Krayer A. Working With People With Experience of Psychosis to Co‐Design an Educational and Anti‐Stigma Psychosis Intervention for Schools. Health Expectations 2025;28(5) View
  26. Gu X, Wang X, Zhang J. Psychological and social risk factors and mental health interventions in tuberculous meningitis: A research progress. World Journal of Psychiatry 2025;15(11) View
  27. Bennetts S, Pepin G, Lucas J. A Reflexive Narrative of Co‐Design Within a Regional Mental Health Service in Victoria, Australia. International Journal of Mental Health Nursing 2025;34(6) View
  28. Veldmeijer L, Terlouw G, Van 'T Veer J, Van Os J, Boonstra N. The Design Rationale and Preliminary Evaluation of a Prototype Designed by People With Lived Experience of Psychosis and Professionals: Design Research Study. Journal of Participatory Medicine 2025;17:e80184 View

Conference Proceedings

  1. Khairani D, Wira Perdana C, Aripiyanto S, Zulkifli , Rosyada D, Handayani R. 2024 12th International Conference on Cyber and IT Service Management (CITSM). Integrating Religious Values in Psychological Consultation Applications: An Evaluation of User Acceptance Using Design Thinking View
  2. Viswanathan S, Ibrahim S, Shankar R, Binns R, Van Kleek M, Slovak P. Proceedings of the 2025 CHI Conference on Human Factors in Computing Systems. The Interaction Layer: An Exploration for Co-Designing User-LLM Interactions in Parental Wellbeing Support Systems View
  3. Alam M, Sadik-Ul Islam Smaron J, Tashfiq Islam M, Halder N, Islam A, Amin M. 2025 5th International Conference on Emerging Smart Technologies and Applications (eSmarTA). User-Centered Design and Evaluation of a Mobile Mental Health App for Stress Management and Relaxation View