This paper is in the following e-collection/theme issue:

Clinical Mental Health Informatics (68) Focus Groups and Qualitative Research for Human Factors Research (1220) Methods and New Tools in Mental Health Research (558) Users' and Patients' Needs for Mental Health Services (502) Electronic Health Records (1319) Ethics, Privacy, and Legal Issues (617)

Published on in Vol 8, No 9 (2021): September

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/30596, first published .
Investigating Mental Health Service User Opinions on Clinical Data Sharing: Qualitative Focus Group Study

Investigating Mental Health Service User Opinions on Clinical Data Sharing: Qualitative Focus Group Study

Investigating Mental Health Service User Opinions on Clinical Data Sharing: Qualitative Focus Group Study

Authors of this article:

Abimbola Adanijo1, 2 Author Orcid Image ;   Caoimhe McWilliams1, 2 Author Orcid Image ;   Til Wykes1, 2 Author Orcid Image ;   Sagar Jilka1, 2, 3 Author Orcid Image
Article Authors Cited by (12) Tweetations (21) Metrics

Journals

  1. Hudson G, Jansli S, Morris D, Wykes T, Jilka S. The impact of patient involvement on participant opinions of information sheets. BJPsych Open 2023;9(1) View
  2. Cumyn A, Ménard J, Barton A, Dault R, Lévesque F, Ethier J. Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review. Journal of Medical Internet Research 2023;25:e45002 View
  3. Schwarz J, Bärkås A, Blease C, Collins L, Hägglund M, Markham S, Hochwarter S. Sharing Clinical Notes and Electronic Health Records With People Affected by Mental Health Conditions: Scoping Review. JMIR Mental Health 2021;8(12):e34170 View
  4. Ling S, Kassam I, Haider S, Lo B, Strudwick G. Pre-implementation perceptions of clinicians regarding a patient portal in inpatient addictions settings: A qualitative descriptive study. International Journal of Medical Informatics 2023;180:105278 View
  5. Sermontyte-Baniule R, Helander N, Nieminen H. A Literature Perspective of Stakeholder’s Perceptions of Value and Risks for the Secondary Use of Health Data. SN Computer Science 2024;5(3) View
  6. Tazi F, Nandakumar A, Dykstra J, Rajivan P, Das S. SoK: Analyzing Privacy and Security of Healthcare Data from the User Perspective. ACM Transactions on Computing for Healthcare 2024;5(2):1 View
  7. Jilka S, Giacco D. Digital phenotyping: how it could change mental health care and why we should all keep up. Journal of Mental Health 2024;33(4):439 View
  8. Honey A, Hancock N, Glover H, Scanlan J, Cao Y, Povolny A, Orr M, Rose G, Govindasamy S, Smith L, Ahmadapour N. Collection and sharing of health information in mental health and related systems in Australia: perspectives of people who access mental health services. BMC Psychiatry 2024;24(1) View
  9. Alam N, Giacco D, Siddiqi B, Singh S, Jilka S. Investigating Awareness and Acceptance of Digital Phenotyping in Dhaka’s Korail Slum: Qualitative Study. JMIR Formative Research 2025;9:e65530 View
  10. Kariotis T, Prictor M, Gray K, Chang S. Service Users’ Perspectives on an Integrated Electronic Care Record in Mental Health Care: Qualitative Vignette and Interview Study. JMIR Medical Informatics 2025;13:e64162 View
  11. Hitching R, Kluge M, Walker F, Gordon C, Lampe L. The acceptability of virtual reality mindfulness for the treatment of insomnia: clinicians and patients’ attitudes. International Journal of Clinical and Health Psychology 2025;25(3):100624 View

Books/Policy Documents

  1. Sundaram A. Artificial Intelligence Transformations for Healthcare Applications. View