Published on in Vol 8, No 12 (2021): December

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/34170, first published .
Sharing Clinical Notes and Electronic Health Records With People Affected by Mental Health Conditions: Scoping Review

Sharing Clinical Notes and Electronic Health Records With People Affected by Mental Health Conditions: Scoping Review

Sharing Clinical Notes and Electronic Health Records With People Affected by Mental Health Conditions: Scoping Review

Journals

  1. Hötger C, Heuser-Collier I. OpenNotes in Mental Health? Kontra. Der Nervenarzt 2022;93(11):1165 View
  2. Shin H, Durocher K, Lo B, Chen S, Ma C, Wiljer D, Strudwick G. Impact of a mental health patient portal on patients’ views of compassion: a mixed-methods study. BMC Digital Health 2023;1(1) View
  3. Hagström J, Blease C, Haage B, Scandurra I, Hansson S, Hägglund M. Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review. Journal of Medical Internet Research 2022;24(11):e40328 View
  4. Schwarz J, Esch T. OpenNotes in Mental Health? Pro. Der Nervenarzt 2022;93(11):1163 View
  5. Zanaboni P, Kristiansen E, Lintvedt O, Wynn R, Johansen M, Sørensen T, Fagerlund A. Impact on patient-provider relationship and documentation practices when mental health patients access their electronic health records online: a qualitative study among health professionals in an outpatient setting. BMC Psychiatry 2022;22(1) View
  6. Hägglund M, Scandurra I. Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study. JMIR Human Factors 2022;9(2):e37192 View
  7. Hagström J, Blease C, Haage B, Scandurra I, Hansson S, Hägglund M. Use of and Experiences With Online Access to Electronic Health Records for Parents, Children, and Adolescents: Protocol for a Scoping Review. JMIR Research Protocols 2022;11(6):e36158 View
  8. Blease C, Torous J, Dong Z, Davidge G, DesRoches C, Kharko A, Turner A, Jones R, Hägglund M, McMillan B. Patient Online Record Access in English Primary Care: Qualitative Survey Study of General Practitioners’ Views. Journal of Medical Internet Research 2023;25:e43496 View
  9. Weiner S, Lo Y, Carroll A, Zhou L, Ngo A, Hathaway D, Rodriguez C, Wakeman S. The Incidence and Disparities in Use of Stigmatizing Language in Clinical Notes for Patients With Substance Use Disorder. Journal of Addiction Medicine 2023;17(4):424 View
  10. Nielsen M, Steinsbekk A, Nøst T. Views on patient portal use for adolescents in mental health care - a qualitative study. BMC Health Services Research 2023;23(1) View
  11. Kassam I, Shin H, Durocher K, Lo B, Shen N, Mehta R, Sockalingam S, Wiljer D, Gratzer D, Sequeira L, Strudwick G. “I think it's something that we should lean in to”: The use of OpenNotes in Canadian psychiatric care contexts by clinicians. DIGITAL HEALTH 2022;8:205520762211441 View
  12. Sanders J, Blanch-Hartigan D, Ericson J, Tarbi E, Rizzo D, Gramling R, van Vliet L. Methodological innovations to strengthen evidence-based serious illness communication. Patient Education and Counseling 2023;114:107790 View
  13. Nielsen M, Steinsbekk A, Nøst T. Interest in using patient portals among adolescents in mental health care - a cross-sectional study. BMC Health Services Research 2023;23(1) View
  14. Schladitz K, Weitzel E, Löbner M, Soltmann B, Jessen F, Pfennig A, Riedel-Heller S, Gühne U. Experiencing (Shared) Decision Making: Results from a Qualitative Study of People with Mental Illness and Their Family Members. Healthcare 2023;11(16):2237 View
  15. Hägglund M, Kharko A, Hagström J, Bärkås A, Blease C, Cajander Å, DesRoches C, Fagerlund A, Haage B, Huvila I, Hörhammer I, Kane B, Klein G, Kristiansen E, Luks K, Moll J, Muli I, Raphaug E, Rexhepi H, Riggare S, Ross P, Scandurra I, Simola S, Soone H, Wang B, Ghorbanian Zolbin M, Åhlfeldt R, Kujala S, Johansen M. The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia. Journal of Medical Internet Research 2023;25:e47573 View
  16. Durocher K, Shin H, Lo B, Chen S, Ma C, Strudwick G. Understanding the Role of Patient Portals in Fostering Interprofessional Collaboration Within Mental Health Care Settings: Mixed Methods Study. JMIR Human Factors 2023;10:e44747 View
  17. Matthews E, Zisman-Ilani Y. Open Notes Use in Psychiatry—The Need for Multilevel Efforts in Research and Practice. JAMA Psychiatry 2023;80(10):977 View
  18. Simola S, Hörhammer I, Xu Y, Bärkås A, Fagerlund A, Hagström J, Holmroos M, Hägglund M, Johansen M, Kane B, Kharko A, Scandurra I, Kujala S. Patients’ Experiences of a National Patient Portal and Its Usability: Cross-Sectional Survey Study. Journal of Medical Internet Research 2023;25:e45974 View
  19. Meier-Diedrich E, Davidge G, Hägglund M, Kharko A, Lyckblad C, McMillan B, Blease C, Schwarz J. Changes in Documentation Due to Patient Access to Electronic Health Records: Protocol for a Scoping Review. JMIR Research Protocols 2023;12:e46722 View
  20. Reynolds T, Cobb J, Steitz B, Ancker J, Rosenbloom S. The State-of-the-Art of Patient Portals: Adapting to External Factors, Addressing Barriers, and Innovating. Applied Clinical Informatics 2023;14(04):654 View
  21. Bärkås A, Kharko A, Blease C, Cajander Å, Johansen Fagerlund A, Huvila I, Johansen M, Kane B, Kujala S, Moll J, Rexhepi H, Scandurra I, Wang B, Hägglund M. Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients: Results from a Nationwide Survey in Sweden. Journal of Medical Internet Research 2023;25:e47841 View
  22. Ling S, Kassam I, Haider S, Lo B, Strudwick G. Pre-implementation perceptions of clinicians regarding a patient portal in inpatient addictions settings: A qualitative descriptive study. International Journal of Medical Informatics 2023;180:105278 View
  23. Ramachandran M, Brinton C, Wiljer D, Upshur R, Gray C. The impact of eHealth on relationships and trust in primary care: a review of reviews. BMC Primary Care 2023;24(1) View
  24. Wang B, Kristiansen E, Fagerlund A, Zanaboni P, Hägglund M, Bärkås A, Kujala S, Cajander Å, Blease C, Kharko A, Huvila I, Kane B, Johansen M. Users’ Experiences With Online Access to Electronic Health Records in Mental and Somatic Health Care: Cross-Sectional Study. Journal of Medical Internet Research 2023;25:e47840 View
  25. Schwarz J, Meier-Diedrich E, Neumann K, Heinze M, Eisenmann Y, Thoma S. Reasons for Acceptance or Rejection of Online Record Access Among Patients Affected by a Severe Mental Illness: Mixed Methods Study. JMIR Mental Health 2024;11:e51126 View
  26. Luckhaus J, Clareborn A, Hägglund M, Riggare S. Balancing feeling ‘prepared’ without feeling ‘devoured’: A qualitative study of self‐care from the perspective of self‐empowered persons living with Parkinson's disease in Sweden. Health Expectations 2024;27(2) View
  27. Ridout B, Forsyth R, Amon K, Navarro P, Campbell A. The Urgent Need for an Evidence-Based Digital Mental Health Practice Model of Care for Youth. JMIR Mental Health 2024;11:e48441 View
  28. Kharko A, Buergler S, Bärkås A, Hägglund M, Gaab J, Fagerlund A, Locher C, Blease C. Open notes in psychotherapy: An exploratory mixed methods survey of psychotherapy students in Switzerland. DIGITAL HEALTH 2024;10 View
  29. Meier-Diedrich E, Neumann K, Heinze M, Schwarz J. Einstellungen und Erwartungen von psychologischen und ärztlichen Psychotherapeut*innen gegenüber Open Notes: Analyse qualitativer Survey-Antworten. Psychiatrische Praxis 2024;51(07):376 View
  30. Belfort E, MacMillan C, Weigle P. Peril and Promise. Child and Adolescent Psychiatric Clinics of North America 2024;33(3):485 View
  31. van Kessel R, Ranganathan S, Anderson M, McMillan B, Mossialos E. Exploring potential drivers of patient engagement with their health data through digital platforms: A scoping review. International Journal of Medical Informatics 2024;189:105513 View
  32. Schwarz J, Hoetger C, Pluschke L, Muehlensiepen F, Schneider M, Thoma S, Esch T. Psychiatrists’ perceptions of conditions and consequences associated with the implementation of open notes: qualitative investigation. BMC Psychiatry 2024;24(1) View
  33. Nielsen M, Steinsbekk A, Nøst T. Development of Recommendations for the Digital Sharing of Notes With Adolescents in Mental Health Care: Delphi Study. JMIR Mental Health 2024;11:e57965 View
  34. Stanhope V, Yoo N, Matthews E, Baslock D, Hu Y. The Impact of Collaborative Documentation on Person-Centered Care: Textual Analysis of Clinical Notes. JMIR Medical Informatics 2024;12:e52678 View
  35. Hägglund M, Kharko A, Bärkås A, Blease C, Cajander Å, DesRoches C, Fagerlund A, Hagström J, Huvila I, Hörhammer I, Kane B, Klein G, Kristiansen E, Moll J, Muli I, Rexhepi H, Riggare S, Ross P, Scandurra I, Simola S, Soone H, Wang B, Ghorbanian Zolbin M, Åhlfeldt R, Kujala S, Johansen M. A Nordic Perspective on Patient Online Record Access and the European Health Data Space. Journal of Medical Internet Research 2024;26:e49084 View
  36. Fagerlund A, Bärkås A, Kharko A, Blease C, Hagström J, Huvila I, Hörhammer I, Kane B, Kristiansen E, Kujala S, Moll J, Rexhepi H, Scandurra I, Simola S, Soone H, Wang B, Åhlfeldt R, Hägglund M, Johansen M. Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden. BMC Psychiatry 2024;24(1) View
  37. Schwarz J, Neumann K, Meier-Diedrich E, Mühlensiepen F, Hochwarter S, Blease C. Psychotherapists’ views on open notes: An online survey from Germany. DIGITAL HEALTH 2024;10 View
  38. Thomas K, Bailey C. The 21st Century Cures Act: More Harm Than Good for Survivors of Intimate Partner Violence?. Violence Against Women 2024 View
  39. Myklebust K, Hoemsnes H, Kvello Ø, Vatnar S. Collaboration with clients to create journal notes: A mixed methods evaluation of a pilot intervention study in a municipality mental health services team. Counselling and Psychotherapy Research 2024 View
  40. Reinhardt I, Holsten R, Zielasek J, Kuhlmann L, Gouzoulis-Mayfrank E. Implementation of an electronic patient portal in routine mental health care of hospitals in Germany – evaluation of attitudes of healthcare providers. BMC Health Services Research 2024;24(1) View
  41. Meier-Diedrich E, Esch T, Hägglund M, Heinze M, Hochwarter S, Speck J, Wagener M, Dahling V, Schwarz J. Experiences of Elderly Mental Health Patients and Their Care Partners Using a Proxy Account to Access Open Notes: Qualitative Study (Preprint). JMIR Aging 2024 View
  42. Meier-Diedrich E, Lyckblad C, Davidge G, Hägglund M, Kharko A, McMillan B, Blease C, Schwarz J. Impact of Patient Online Record Access on Documentation: A Scoping Review (Preprint). Journal of Medical Internet Research 2024 View
  43. Kawasaki Y, Nii M, Nishioka E. Nursing Records Regarding Decision-Making in Cancer Supportive Care: A Retrospective Study in Japan. Healthcare Informatics Research 2024;30(4):364 View
  44. Hörhammer I, Suvanto J, Kinnunen M, Kujala S. Usefulness of self-guided digital services among mental health patients: The role of health confidence and sociodemographic characteristics. International Journal of Medical Informatics 2025;194:105693 View
  45. La Q, Lo D. RE: The use and impact of pathology tests in emergency department patients with mental health‐related complaints: A cross sectional study. Emergency Medicine Australasia 2024 View
  46. Cohen A, Langabeer J, Lopez A, Champagne-Langabeer T. Gaps and Direction for Digital Records Impacting the Mental Health Patient-Provider Dyad: A Systematic Review. Journal of Contemporary Psychotherapy 2024 View
  47. Kariotis T, Prictor M, Gray K, Chang S. Patient Accessible Electronic Health Records and Information Practices in Mental Healthcare Contexts: A Scoping Review (Preprint). Journal of Medical Internet Research 2023 View
  48. Wurster F, Meier-Diedrich E, Demirer I, DesRoches C, Goldberg N, Hägglund M, Herrmann C, Karbach U, Purohit A, Schrader T, Schwarz J. Online-Zugang zu klinischen Behandlungsnotizen für ambulant versorgte Patienten (Studienprotokoll zur OpenNOTES-Studie). Nervenheilkunde 2024;43(12):714 View
  49. Schwarz J, Kaminski J, Brieger P. Versorgungsgerechtigkeit und Digital Mental Health. Nervenheilkunde 2024;43(12):667 View

Books/Policy Documents

  1. Wong C, Jackson S. The Patient-Centered Approach to Medical Note-Writing. View