This paper is in the following e-collection/theme issue:

Transdiagnostic Mental Health Interventions (120) Peer-to-Peer Support and Online Communities (594) Users' and Patients' Needs for Mental Health Services (378)

Published on in Vol 6, No 3 (2019): March

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/11084, first published .
Social Connection and Online Engagement: Insights From Interviews With Users of a Mental Health Online Forum

Social Connection and Online Engagement: Insights From Interviews With Users of a Mental Health Online Forum

Social Connection and Online Engagement: Insights From Interviews With Users of a Mental Health Online Forum

Authors of this article:

Jennifer Smith-Merry1 Author Orcid Image ;   Gerard Goggin2 Author Orcid Image ;   Andrew Campbell3 Author Orcid Image ;   Kirsty McKenzie1 Author Orcid Image ;   Brad Ridout3 Author Orcid Image ;   Cherry Baylosis2 Author Orcid Image
Article Authors Cited by (56) Tweetations (42) Metrics

Journals

  1. Strand M, Eng L, Gammon D. Combining online and offline peer support groups in community mental health care settings: a qualitative study of service users’ experiences. International Journal of Mental Health Systems 2020;14(1) View
  2. Trail T, Friedman E, Rutter C, Tanielian T. The Relationship Between Engagement in Online Support Groups and Social Isolation Among Military Caregivers: Longitudinal Questionnaire Study. Journal of Medical Internet Research 2020;22(4):e16423 View
  3. Stetten N, LeBeau K, Aguirre M, Vogt A, Quintana J, Jennings A, Hart M. Analyzing the Communication Interchange of Individuals With Disabilities Utilizing Facebook, Discussion Forums, and Chat Rooms: Qualitative Content Analysis of Online Disabilities Support Groups. JMIR Rehabilitation and Assistive Technologies 2019;6(2):e12667 View
  4. Batterham P, Kazan D, Banfield M, Brown K. Differences in mental health service use between urban and rural areas of Australia. Australian Psychologist 2020;55(4):327 View
  5. Manning J, Blandford A, Edbrooke-Childs J, Marshall P. How Contextual Constraints Shape Midcareer High School Teachers' Stress Management and Use of Digital Support Tools: Qualitative Study. JMIR Mental Health 2020;7(4):e15416 View
  6. Roystonn K, Vaingankar J, Chua B, Sambasivam R, Shafie S, Jeyagurunathan A, Verma S, Abdin E, Chong S, Subramaniam M. The Public Health Impact and Policy Implications of Online Support Group Use for Mental Health in Singapore: Cross-Sectional Survey. JMIR Mental Health 2020;7(8):e18114 View
  7. Tan Y, Rehm I, Stevenson J, De Foe A. Social Media Peer Support Groups for Obsessive-Compulsive and Related Disorders: Understanding the Predictors of Negative Experiences. Journal of Affective Disorders 2021;281:661 View
  8. Sik D. From Lay Depression Narratives to Secular Ritual Healing: An Online Ethnography of Mental Health Forums. Culture, Medicine, and Psychiatry 2021;45(4):751 View
  9. Phillips E, Himmler S, Schreyögg J. Preferences for e-Mental Health Interventions in Germany: A Discrete Choice Experiment. Value in Health 2021;24(3):421 View
  10. Németh R, Sik D, Katona E. The asymmetries of the biopsychosocial model of depression in lay discourses - Topic modelling online depression forums. SSM - Population Health 2021;14:100785 View
  11. Bernabéu‐Álvarez C, Lima‐Rodríguez J, Lima‐Serrano M. Effect of support groups on caregiver’s quality of life. Family Process 2022;61(2):643 View
  12. Alhasani M, Mulchandani D, Oyebode O, Baghaei N, Orji R. A Systematic and Comparative Review of Behavior Change Strategies in Stress Management Apps: Opportunities for Improvement. Frontiers in Public Health 2022;10 View
  13. Perry A, Lamont-Mills A, Preez J, Plessis C. “I Want to Be Stepping in More” - Professional Online Forum Moderators' Experiences of Supporting Individuals in a Suicide Crisis. Frontiers in Psychiatry 2022;13 View
  14. You Y, Yang-Huang J, Raat H, Van Grieken A. Social Media Use and Health-Related Quality of Life Among Adolescents: Cross-sectional Study. JMIR Mental Health 2022;9(10):e39710 View
  15. Efunnuga H, Higgs P, Walker S, O'Keefe D. Health service utilisation and access for people who inject drugs during COVID‐19. Drug and Alcohol Review 2022;41(6):1304 View
  16. Stevens M, Cartagena Farías J, Mindel C, D’Amico F, Evans-Lacko S. Pilot evaluation to assess the effectiveness of youth peer community support via the Kooth online mental wellbeing website. BMC Public Health 2022;22(1) View
  17. Cohen J, Patterson P, Noke M, Clarke K, Husson O. Development and Evaluation of the Canteen Connect Online Health Community: Using a Participatory Design Approach in Meeting the Needs of Young People Impacted by Cancer. Cancers 2021;14(1):50 View
  18. Wang Y, Li S, Gong J, Cao L, Xu D, Yu Q, Wang X, Chen Y. Perceived Stigma and Self-Efficacy of Patients With Inflammatory Bowel Disease-Related Stoma in China: A Cross-Sectional Study. Frontiers in Medicine 2022;9 View
  19. Philippe T, Sikder N, Jackson A, Koblanski M, Liow E, Pilarinos A, Vasarhelyi K. Digital Health Interventions for Delivery of Mental Health Care: Systematic and Comprehensive Meta-Review. JMIR Mental Health 2022;9(5):e35159 View
  20. McAuliffe C, Slemon A, Goodyear T, McGuinness L, Shaffer E, Jenkins E. Connectedness in the time of COVID-19: Reddit as a source of support for coping with suicidal thinking. SSM - Qualitative Research in Health 2022;2:100062 View
  21. Jones S, Atanasova D, Dodd S, Flowers S, Rosala-Hallas A, Robinson H, Semino E, Lobban F. Use of an Online Forum for Relatives of People With Psychosis and Bipolar Disorder: Mixed Methods Study. JMIR Mental Health 2022;9(10):e35837 View
  22. Humphries A, Tasnim N, Rugh R, Patrick M, Basso J. Acutely enhancing affective state and social connection following an online dance intervention during the COVID-19 social isolation crisis. BMC Psychology 2023;11(1) View
  23. Simpson A, Gerritsen C, Maheandiran M, Adamo V, Vogel T, Fulham L, Kitt T, Forrester A, Jones R. A Systematic Review of Reviews of Correctional Mental Health Services Using the STAIR Framework. Frontiers in Psychiatry 2022;12 View
  24. Walker R, Quong S, Olivier P, Wu L, Xie J, Boyle J. Empowerment for behaviour change through social connections: a qualitative exploration of women’s preferences in preconception health promotion in the state of Victoria, Australia. BMC Public Health 2022;22(1) View
  25. Kilpatrick S, Emery S, Farmer J, Kamstra P. Wellness Impacts of Social Capital Built in Online Peer Support Forums. International Journal of Environmental Research and Public Health 2022;19(23):15427 View
  26. Marshall P, Jones S, Gooding P, Robinson H, Lobban F. Caring for a Family Member with Psychosis or Bipolar Disorder Who Has Experienced Suicidal Behaviour: An Exploratory Qualitative Study of an Online Peer-Support Forum. International Journal of Environmental Research and Public Health 2022;19(22):15192 View
  27. Nasrullah S, Jalali A, Koundal D. Detection of Types of Mental Illness through the Social Network Using Ensembled Deep Learning Model. Computational Intelligence and Neuroscience 2022;2022:1 View
  28. Ahmed M, Cerda I, Maloof M. Breaking the vicious cycle: The interplay between loneliness, metabolic illness, and mental health. Frontiers in Psychiatry 2023;14 View
  29. Kilpatrick S, Farmer J, Emery S, Kamstra P, Steiner A, McCosker A, Carlisle K. Community transformed? Exploring the interaction between online support and rural community life for people with acute mental health conditions. Journal of Rural Studies 2023;99:167 View
  30. Collins A, Beaudoin F, Metrik J, Wightman R. “I still partly think this is bullshit”: A qualitative analysis of cannabinoid hyperemesis syndrome perceptions among people with chronic cannabis use and cyclic vomiting. Drug and Alcohol Dependence 2023;246:109853 View
  31. Li H, Glecia A. Impact of Social Isolation and Digital Divide on Mental Health and Wellbeing in Patients with Mental Health Disorders during COVID-19: A Multiple Case Study. Issues in Mental Health Nursing 2023;44(4):313 View
  32. Mancini V, Takeda R, Nagar A, Robison B. “Connection, community and convenience”: A case study of a Facebook group for fathers navigating parenthood. Health Promotion Journal of Australia 2023;34(4):702 View
  33. Jagfeld G, Lobban F, Humphreys C, Rayson P, Jones S. How People With a Bipolar Disorder Diagnosis Talk About Personal Recovery in Peer Online Support Forums: Corpus Framework Analysis Using the POETIC Framework. JMIR Medical Informatics 2023;11:e46544 View
  34. Bizzotto N, de Bruijn G, Schulz P. Buffering against exposure to mental health misinformation in online communities on Facebook: the interplay of depression literacy and expert moderation. BMC Public Health 2023;23(1) View
  35. Lobban F, Coole M, Donaldson E, Glossop Z, Haines J, Johnston R, Jones S, Lodge C, Machin K, Marshall P, Meacock R, Penhaligon K, Rakić T, Rawsthorne M, Rayson P, Robinson H, Rycroft-Malone J, Semino E, Shryane N, Wise S. Improving Peer Online Forums (iPOF): protocol for a realist evaluation of peer online mental health forums to inform practice and policy. BMJ Open 2023;13(7):e075142 View
  36. Steiner A, Farmer J, Kamstra P, Carlisle K, McCosker A, Kilpatrick S. Online Mental Health Forums and Rural Resilience: Mixed Methods Study and Logic Model. JMIR Mental Health 2023;10:e47459 View
  37. Engineer M, Kot S, Dixon E. Investigating the Readability and Linguistic, Psychological, and Emotional Characteristics of Digital Dementia Information Written in the English Language: Multitrait-Multimethod Text Analysis. JMIR Formative Research 2023;7:e48143 View
  38. Németh R, Sik D, Zaboretzky B, Katona E. Depression in times of a pandemic – the impact of COVID-19 on the lay discourses of e-mental health communities. Information, Communication & Society 2024;27(3):538 View
  39. Horwood G, Augoustinos M, Due C. “I *know* all the things I should be doing …”: accounting for mental health and illness in an online mental health discussion forum during the COVID-19 pandemic. BMC Psychology 2023;11(1) View
  40. Stanek C, Mattson G. ‘At Least You’re Not Neurotypical’: Stigma, Mental Illness Disclosure, and Social Capital Among Privileged College Students. Deviant Behavior 2024;45(2):247 View
  41. You X, Bailey J, Won A, Ahn S, MacIntyre B. Social VR: A Promising Platform for Enhancing Mental Wellness among College Students. Proceedings of the Association for Information Science and Technology 2023;60(1):479 View
  42. Thorn P, La Sala L, Hetrick S, Rice S, Lamblin M, Robinson J. Motivations and perceived harms and benefits of online communication about self-harm: An interview study with young people. DIGITAL HEALTH 2023;9:205520762311766 View
  43. Sommer S, Barroso J, Bass S, Congema M, Schoemann A, Caiola C. Peer advice for women living with HIV in the Southern USA. Culture, Health & Sexuality 2023:1 View
  44. Stoll N, Jieman A, Yalipende Y, Byrom N, Lempp H, Hatch S. A Qualitative Evaluation of the Motivations, Experiences, and Impact of a Mental Wellbeing Peer Support Group for Black University Students in England and Wales: The Case of Black Students Talk. SAGE Open 2023;13(4) View
  45. Wang W, Blackburn K, Thompson R, Bajaj K, Pedler R, Fucci K. Trauma Isn’t One Size Fits All: How Online Support Communities Point to Different Diagnostic Criteria for C-PTSD and PTSD. Health Communication 2024:1 View
  46. Knopes J. Chat windows and zoom bombers: virtual boundaries in mental health peer support. Disability & Society 2024:1 View
  47. Xu X, Cheng G. Save the Day: How the Dissemination of Tourism Crises Can Reinvigorate a Tourism Destination Image after the Seoul Halloween Crowd Crush. Sustainability 2024;16(6):2256 View
  48. Mettela S, Chima M, Costigan H, Stuckey-Peyrot H, Baweja R, Riley K. “Pap smear horror stories, self loathing, feeling like I was less of a woman”: A qualitative content analysis of an online vaginismus forum. Journal of Endometriosis and Pelvic Pain Disorders 2024 View
  49. Ross D, McCallum N, Truuvert A, Butt A, Behdinan T, Rojas D, Soklaridis S, Vigod S. The development and evaluation of a virtual, asynchronous, trauma-focused treatment program for adult survivors of childhood interpersonal trauma. Journal of Mental Health 2024:1 View
  50. Marshall P, Booth M, Coole M, Fothergill L, Glossop Z, Haines J, Harding A, Johnston R, Jones S, Lodge C, Machin K, Meacock R, Nielson K, Puddephatt J, Rakic T, Rayson P, Robinson H, Rycroft-Malone J, Shryane N, Swithenbank Z, Wise S, Lobban F. Understanding the Impacts of Online Mental Health Peer Support Forums: Realist Synthesis. JMIR Mental Health 2024;11:e55750 View
  51. Carlisle K, Kamstra P, Carlisle E, McCosker A, De Cotta T, Kilpatrick S, Steiner A, Kahl B, Farmer J. A qualitative exploration of online forums to support resilience of rural young people in Australia. Frontiers in Public Health 2024;12 View
  52. Lyons M, Gupta V, Blaney P, Ogenyi A, Webster E, Brewer G. The complex lived experience of schizophrenia diagnosis: a thematic analysis of online forum posts. Current Psychology 2024 View
  53. Peart A, Horn F, Petukhova R, Barnett A, Lubman D. Web-Based Forums for People Experiencing Substance Use or Gambling Disorders: Scoping Review. JMIR Mental Health 2024;11:e49010 View
  54. Lindgreen P, Willaing I, Clausen L, Ismail K, Kjærulff E, Cleal B. Discussions About Binge Eating and Type 2 Diabetes in a Facebook Group: A Qualitative Analysis. International Journal of Eating Disorders 2024 View

Books/Policy Documents

  1. Levin B, Hanson A. Women’s Behavioral Health. View