Published on in Vol 6, No 11 (2019): November

Preprints (earlier versions) of this paper are available at, first published .
Patient Privacy Perspectives on Health Information Exchange in a Mental Health Context: Qualitative Study

Patient Privacy Perspectives on Health Information Exchange in a Mental Health Context: Qualitative Study

Patient Privacy Perspectives on Health Information Exchange in a Mental Health Context: Qualitative Study


  1. Esmaeilzadeh P, Mirzaei T, Dharanikota S. The impact of data entry structures on perceptions of individuals with chronic mental disorders and physical diseases towards health information sharing. International Journal of Medical Informatics 2020;141:104157 View
  2. Hwang H, Lin Y. Evaluating people’s concern about their health information privacy based on power-responsibility equilibrium model: A case of Taiwan. Journal of Medical Systems 2020;44(6) View
  3. Zhu P, Shen J, Xu M. Patients’ Willingness to Share Information in Online Patient Communities: Questionnaire Study. Journal of Medical Internet Research 2020;22(4):e16546 View
  4. Dang Y, Guo S, Guo X, Wang M, Xie K. Privacy Concerns About Health Information Disclosure in Mobile Health: Questionnaire Study Investigating the Moderation Effect of Social Support. JMIR mHealth and uHealth 2021;9(2):e19594 View
  5. Cochran R, Feldman S, Ivankova N, Hall A, Opoku-Agyeman W. Intention to Use Behavioral Health Data From a Health Information Exchange: Mixed Methods Study. JMIR Mental Health 2021;8(5):e26746 View
  6. Soni H, Ivanova J, Grando A, Murcko A, Chern D, Dye C, Whitfield M. A pilot comparison of medical records sensitivity perspectives of patients with behavioral health conditions and healthcare providers. Health Informatics Journal 2021;27(2):146045822110099 View
  7. Kariotis T, Prictor M, Chang S, Gray K. Impact of Electronic Health Records on Information Practices in Mental Health Contexts: Scoping Review. Journal of Medical Internet Research 2022;24(5):e30405 View
  8. Pope L, Warnock A, Perry T, Langlois S, Anderson S, Boswell T, Appelbaum P, Dixon L, Watson A, Compton M. Information sharing across mental health service providers and criminal legal system stakeholders: Perspectives of people with serious mental illnesses and their family members. Social Science & Medicine 2022;307:115178 View
  9. Birtwistle J, Millares-Martin P, Evans C, Foy R, Relton S, Richards S, Sleeman K, Twiddy M, Bennett M, Allsop M, Dür M. Mapping and characterising electronic palliative care coordination systems and their intended impact: A national survey of end-of-life care commissioners. PLOS ONE 2022;17(10):e0275991 View
  10. Kassam I, Ilkina D, Kemp J, Roble H, Carter-Langford A, Shen N. Patient Perspectives and Preferences for Consent in the Digital Health Context: State-of-the-art Literature Review. Journal of Medical Internet Research 2023;25:e42507 View
  11. Toni E, Pirnejad H, Makhdoomi K, Mivefroshan A, Niazkhani Z. Patient empowerment through a user-centered design of an electronic personal health record: a qualitative study of user requirements in chronic kidney disease. BMC Medical Informatics and Decision Making 2021;21(1) View
  12. Bakken V, Koposov R, Røst T, Clausen C, Nytrø Ø, Leventhal B, Westbye O, Koochakpour K, Mandahl A, Hafstad H, Skokauskas N. Attitudes of Mental Health Service Users Toward Storage and Use of Electronic Health Records. Psychiatric Services 2022;73(9):1013 View
  13. Shen N, Kassam I, Zhao H, Chen S, Wang W, Wickham S, Strudwick G, Carter-Langford A. Foundations for Meaningful Consent in Canada’s Digital Health Ecosystem: Retrospective Study. JMIR Medical Informatics 2022;10(3):e30986 View
  14. Haji E, Ebrahim A, Fardan H, Jahrami H. Reporting Inpatients’ Experiences and Satisfaction in a National Psychiatric Facility: A Study Based on the Random Forest Algorithm. Journal of Patient Experience 2022;9:237437352110698 View
  15. Kirkham E, Lawrie S, Crompton C, Iveson M, Jenkins N, Goerdten J, Beange I, Chan S, McIntosh A, Fletcher-Watson S. Experience of clinical services shapes attitudes to mental health data sharing: findings from a UK-wide survey. BMC Public Health 2022;22(1) View
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  17. Nogueira-Leite D, Cruz-Correia R. Attitudes of Physicians and Individuals Toward Digital Mental Health Tools: Protocol for a Web-Based Survey Research Project. JMIR Research Protocols 2023;12:e41040 View
  18. Jeyakumar T, Younus S, Zhang M, Clare M, Charow R, Karsan I, Dhalla A, Al-Mouaswas D, Scandiffio J, Aling J, Salhia M, Lalani N, Overholt S, Wiljer D. Preparing for an Artificial Intelligence–Enabled Future: Patient Perspectives on Engagement and Health Care Professional Training for Adopting Artificial Intelligence Technologies in Health Care Settings. JMIR AI 2023;2:e40973 View
  19. Busch-Casler J, Radic M. Trust and Health Information Exchanges: Qualitative Analysis of the Intent to Share Personal Health Information. Journal of Medical Internet Research 2023;25:e41635 View
  20. Tully L, Nye K, Ereshefsky S, Tryon V, Hakusui C, Savill M, Niendam T. Incorporating Community Partner Perspectives on eHealth Technology Data Sharing Practices for the California Early Psychosis Intervention Network: Qualitative Focus Group Study With a User-Centered Design Approach. JMIR Human Factors 2023;10:e44194 View
  21. Watson E, Fletcher-Watson S, Kirkham E. Views on sharing mental health data for research purposes: qualitative analysis of interviews with people with mental illness. BMC Medical Ethics 2023;24(1) View
  22. Baines R, Stevens S, Austin D, Anil K, Bradwell H, Cooper L, Maramba I, Chatterjee A, Leigh S. Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review. Journal of Medical Internet Research 2024;26:e50421 View
  23. Derr J, Schrode K. Empowering Patients Through Health Information. Physician Assistant Clinics 2024 View
  24. Koposov R, Stien L, Clausen C, Leventhal B, Westbye O, Nytrø Ø, Koochakpour K, Pant D, Røst T, Mandahl A, Hafstad H, Skokauskas N. Patients and family attitudes about clinical and research sharing of electronic clinical data. Nordic Journal of Psychiatry 2024:1 View
  25. Gürsel G, Bayer N, Turunç Ö, Çalışkan A, Akkoç İ, Demirci A, Çetin M, Köroğlu Ö. An Evaluation of Patient Privacy Protection with Fuzzy Conjoint Analysis—A Case Study from Nurses’ Perspective. Healthcare 2024;12(13):1363 View

Books/Policy Documents

  1. Jara H, Navarro H, Armas-Aguirre J. Proceedings of the 6th Brazilian Technology Symposium (BTSym’20). View
  2. Edberg D. Clinical Health Psychology in Military and Veteran Settings. View
  3. Subbian V, Galvin H, Petersen C, Solomonides A. Mental Health Informatics. View
  4. Singh S, Joshi R, Jain P, Abilash K. Emotional AI and Human-AI Interactions in Social Networking. View
  5. Mazur S, Sharma J. The Complex Role of Patient Trust in Oncology. View