Published on in Vol 4, No 3 (2017): Jul-Sept

Peer Communication in Online Mental Health Forums for Young People: Directional and Nondirectional Support

Peer Communication in Online Mental Health Forums for Young People: Directional and Nondirectional Support

Peer Communication in Online Mental Health Forums for Young People: Directional and Nondirectional Support

Authors of this article:

Julie Prescott1 Author Orcid Image ;   Terry Hanley2 Author Orcid Image ;   Katalin Ujhelyi1 Author Orcid Image


  1. Perkins V, Coulson N, Davies E. Using Online Support Communities for Tourette Syndrome and Tic Disorders: Online Survey of Users’ Experiences. Journal of Medical Internet Research 2020;22(11):e18099 View
  2. Prescott J, Hanley T, Ujhelyi Gomez K. Why do young people use online forums for mental health and emotional support? Benefits and challenges. British Journal of Guidance & Counselling 2019;47(3):317 View
  3. Mannan M, Ahamed R, Zaman S. Consumers' willingness to purchase online mental health services. Journal of Services Marketing 2019;33(5):557 View
  4. Shaw E. The use of online discussion forums and communities for health research. Family Practice 2020;37(4):574 View
  5. McEnery C, Lim M, Knowles A, Rice S, Gleeson J, Howell S, Russon P, Miles C, D’Alfonso S, Alvarez-Jimenez M. Development of a Moderated Online Intervention to Treat Social Anxiety in First-Episode Psychosis. Frontiers in Psychiatry 2019;10 View
  6. Tucker I, Lavis A. Temporalities of mental distress: digital immediacy and the meaning of ‘crisis’ in online support. Sociology of Health & Illness 2019;41(S1):132 View
  7. Roystonn K, Vaingankar J, Chua B, Sambasivam R, Shafie S, Jeyagurunathan A, Verma S, Abdin E, Chong S, Subramaniam M. The Public Health Impact and Policy Implications of Online Support Group Use for Mental Health in Singapore: Cross-Sectional Survey. JMIR Mental Health 2020;7(8):e18114 View
  8. Yip J. Evaluating the Communication of Online Social Support: A Mixed-Methods Analysis of Structure and Content. Health Communication 2020;35(10):1210 View
  9. Wu W, Hung C. Impact of a peer virtual community on pregnant women's well‐being: A repeated‐measure and quasi‐experimental study. Journal of Advanced Nursing 2019;75(5):1099 View
  10. Michalak E, Morton E, Barnes S, Hole R, Murray G. Supporting Self-Management in Bipolar Disorder: Mixed-Methods Knowledge Translation Study. JMIR Mental Health 2019;6(4):e13493 View
  11. Matthews P, Topham P, Caleb-Solly P. Interaction and Engagement with an Anxiety Management App: Analysis Using Large-Scale Behavioral Data. JMIR Mental Health 2018;5(4):e58 View
  12. Michel L, Nguyen L, Nguyen A, Ekwaru J, Laureillard D, Nagot N, Phan O, Khuat O. Exposure to HIV risks among young people who use drugs (YPUD) in three cities in Vietnam: time to develop targeted interventions. Harm Reduction Journal 2020;17(1) View
  13. Crawford G, Maycock B, Tobin R, Brown G, Lobo R. Prevention of HIV and Other Sexually Transmissible Infections in Expatriates and Traveler Networks: Qualitative Study of Peer Interaction in an Online Forum. Journal of Medical Internet Research 2018;20(9):e10787 View
  14. Perry A, Lamont-Mills A, du Plessis C, du Preez J, Pyle D. Suicidal behaviours and moderator support in online health communities: protocol for a scoping review. BMJ Open 2020;10(1):e034162 View
  15. Hanley T, Prescott J, Gomez K. A systematic review exploring how young people use online forums for support around mental health issues. Journal of Mental Health 2019;28(5):566 View
  16. Prescott J, Rathbone A, Hanley T. Online mental health communities, self-efficacy and transition to further support. Mental Health Review Journal 2020;25(4):329 View
  17. Sik D. From Lay Depression Narratives to Secular Ritual Healing: An Online Ethnography of Mental Health Forums. Culture, Medicine, and Psychiatry 2021;45(4):751 View
  18. Mertan E, Croucher L, Shafran R, Bennett S. An investigation of the information provided to the parents of young people with mental health needs on an internet forum. Internet Interventions 2021;23:100353 View
  19. Prescott J, Rathbone A, Brown G. Online peer to peer support: Qualitative analysis of UK and US open mental health Facebook groups. DIGITAL HEALTH 2020;6:205520762097920 View
  20. Mariën S, Vandebosch H, Pabian S, Poels K. Coping with distress among adolescents: Effectiveness of personal narratives on support websites. Comunicar 2021;29(67):87 View
  21. Hanley T, Sefi A, Grauberg J, Prescott J, Etchebarne A. A Theory of Change for Web-Based Therapy and Support Services for Children and Young People: Collaborative Qualitative Exploration. JMIR Pediatrics and Parenting 2021;4(1):e23193 View
  22. Bickerstaff J, Karim S, Whitman R, Cypher A, Wiener S, Radovic A. “You Have People Here to Help You, People Like Me”: a Qualitative Analysis of a Blogging Intervention for Adolescents and Young Adults with Depression or Anxiety. Journal of Technology in Behavioral Science 2021;6(4):578 View
  23. Watling D, Batchelor S, Collyer B, Mathieu S, Ross V, Spence S, Kõlves K. Help-Seeking from a National Youth Helpline in Australia: An Analysis of Kids Helpline Contacts. International Journal of Environmental Research and Public Health 2021;18(11):6024 View
  24. Nasier B, Gibson K, Trnka S. “PM me” or “LOL”: Young peoples’ observations of supportive and unsympathetic responses to distress on social media. Computers in Human Behavior 2021;124:106933 View
  25. Perry A, Pyle D, Lamont-Mills A, du Plessis C, du Preez J. Suicidal behaviours and moderator support in online health communities: a scoping review. BMJ Open 2021;11(6):e047905 View
  26. Brown G, Rathbone A, Prescott J. Social media use for supporting mental health (SMILE). Mental Health Review Journal 2021;26(3):279 View
  27. Farnood A, Johnston B, Mair F. An analysis of the diagnostic accuracy and peer‐to‐peer health information provided on online health forums for heart failure. Journal of Advanced Nursing 2022;78(1):187 View
  28. Browne N, Carragher N, O’Toole A, Pimm J, Ryder J, Thew G. Evaluating user experiences of SHaRON: an online CBT-based peer support platform. The Cognitive Behaviour Therapist 2022;15 View
  29. Gibbs A, Gumede D, Luthuli M, Xulu Z, Washington L, Sikweyiya Y, Adeagbo O, Shahmanesh M. Opportunities for technologically driven dialogical health communication for participatory interventions: Perspectives from male peer navigators in rural South Africa. Social Science & Medicine 2022;292:114539 View
  30. Chen S, Lam T, Lam K, Lo T, Chao D, Mak K, Lam E, Tang W, Chan H, Yip P. The Use of Close Friends on Instagram, Help-Seeking Willingness, and Suicidality Among Hong Kong Youth: Exploratory Sequential Mixed Methods Study. Journal of Medical Internet Research 2022;24(10):e37695 View
  31. Matheson E, Smith H, Amaral A, Meireles J, Almeida M, Mora G, Leon C, Gertner G, Ferrario N, Suarez Battan L, Linardon J, Fuller-Tyszkiewicz M, Diedrichs P. Improving body image at scale among Brazilian adolescents: study protocol for the co-creation and randomised trial evaluation of a chatbot intervention. BMC Public Health 2021;21(1) View
  32. Meyerhoff J, Kornfield R, Mohr D, Reddy M. Meeting Young Adults' Social Support Needs across the Health Behavior Change Journey: Implications for Digital Mental Health Tools. Proceedings of the ACM on Human-Computer Interaction 2022;6(CSCW2):1 View
  33. Stevens M, Cartagena Farías J, Mindel C, D’Amico F, Evans-Lacko S. Pilot evaluation to assess the effectiveness of youth peer community support via the Kooth online mental wellbeing website. BMC Public Health 2022;22(1) View
  34. Golz C, Richter D, Sprecher N, Gurtner C. Mental health-related communication in a virtual community: text mining analysis of a digital exchange platform during the Covid-19 pandemic. BMC Psychiatry 2022;22(1) View
  35. Li J, Liu D, Wan C, Liang Z, Zhu T. Empirical study of factors that influence the perceived usefulness of online mental health community members. PsyCh Journal 2023;12(2):307 View
  36. Perry A, Lamont-Mills A, Preez J, Plessis C. “I Want to Be Stepping in More” - Professional Online Forum Moderators' Experiences of Supporting Individuals in a Suicide Crisis. Frontiers in Psychiatry 2022;13 View
  37. Nanomi Arachchige I, Sandanapitchai P, Weerasinghe R. Investigating Machine Learning & Natural Language Processing Techniques Applied for Predicting Depression Disorder from Online Support Forums: A Systematic Literature Review. Information 2021;12(11):444 View
  38. Akhther N, Sopory P. Seeking and Sharing Mental Health Information on Social Media During COVID-19: Role of Depression and Anxiety, Peer Support, and Health Benefits. Journal of Technology in Behavioral Science 2022;7(2):211 View
  39. Gu D, Li M, Yang X, Gu Y, Zhao Y, Liang C, Liu H. An analysis of cognitive change in online mental health communities: A textual data analysis based on post replies of support seekers. Information Processing & Management 2023;60(2):103192 View
  40. Bennett V, Gill C, Miller P, Lewis P, YPAG N, Hamilton‐Giachritsis C, Lavi I. Developing a novel co‐produced methodology to understand ‘real‐world’ help‐seeking in online peer–peer communities by young people experiencing emotional abuse and neglect. Health Expectations 2022;25(6):3124 View
  41. Philippe T, Sikder N, Jackson A, Koblanski M, Liow E, Pilarinos A, Vasarhelyi K. Digital Health Interventions for Delivery of Mental Health Care: Systematic and Comprehensive Meta-Review. JMIR Mental Health 2022;9(5):e35159 View
  42. Banwell E, Hanley T, De Ossorno Garcia S, Mindel C, Kayll T, Sefi A. The Helpfulness of Web-Based Mental Health and Well-being Forums for Providing Peer Support for Young People: Cross-sectional Exploration. JMIR Formative Research 2022;6(9):e36432 View
  43. Prescott J. Digital technology to support mental health: a brief introduction to what it is and why it is important?. Mental Health and Social Inclusion 2022;26(2):103 View
  44. Ansari B, Du S. Investigating User-Generated Content in an Online Drug Recovery Forum: Lessons for Successful Computer-Mediated Communication of Social Support. IEEE Journal of Biomedical and Health Informatics 2022;26(11):5695 View
  45. Gray C, Crawford G, Maycock B, Lobo R. “Maybe it’s an Indo thing”: Transnational health experiences of Indonesian women living in Australia. Health & Place 2023;81:103006 View
  46. Bennett V, Gill C, Miller P, Sayers C, Appleton J. ‘From their own words’: A co‐produced study interpreting children and young people's experiences of emotional abuse and neglect expressed in anonymous, online peer‐peer message forums. Child Abuse Review 2023;32(5) View
  47. Alkalay S, Dolev A. Enabling young elementary‐school children to ask questions on a school‐based internet forum operated by educational psychologists. Psychology in the Schools 2023;60(8):2932 View
  48. Jayman M, Ayliffe J, Essau C. Adaptation, Innovation and Co-Production: Meeting the Mental Wellbeing Needs of a Digital Generation. Youth 2023;3(1):447 View
  49. Kim M, Saha K, De Choudhury M, Choi D. Supporters First: Understanding Online Social Support on Mental Health from a Supporter Perspective. Proceedings of the ACM on Human-Computer Interaction 2023;7(CSCW1):1 View
  50. Ton A, Carter S, Leitner R, Zoellner L, Mizik N, Reger M. Peer-Written Caring Letters for Veterans after a Suicidal Crisis. Archives of Suicide Research 2024;28(2):585 View
  51. Karras J, Harrison M, Seale H. ‘Getting the vaccine makes me a champion of it’: Exploring perceptions towards peer‐to‐peer communication about the COVID‐19 vaccines amongst Australian adults. Health Expectations 2023;26(4):1505 View
  52. Steiner A, Farmer J, Kamstra P, Carlisle K, McCosker A, Kilpatrick S. Online Mental Health Forums and Rural Resilience: Mixed Methods Study and Logic Model. JMIR Mental Health 2023;10:e47459 View
  53. Németh R, Sik D, Zaboretzky B, Katona E. Depression in times of a pandemic – the impact of COVID-19 on the lay discourses of e-mental health communities. Information, Communication & Society 2024;27(3):538 View
  54. Liu J, Lee D, Stevens E. Characteristics Associated with Young Adults’ Intentions to Engage with Anti-Vaping Instagram Posts. International Journal of Environmental Research and Public Health 2023;20(11):6054 View
  55. Templeton K. CORR Insights®: Most Patients With Bone Sarcomas Seek Emotional Support and Information About Other Patients’ Experiences: A Thematic Analysis. Clinical Orthopaedics & Related Research 2024;482(1):172 View
  56. Full W, Vossler A, Moller N, Pybis J, Roddy J. Therapists' and counsellors' perceptions and experiences of offering online therapy during COVID‐19: A qualitative survey. Counselling and Psychotherapy Research 2024;24(2):703 View
  57. Bjärehed J, Grönberg H, Jarlvik E. The different faces of online support: A thematic analysis of responses to help-seeking related to depression and suicidal ideation in public online forums. Cyberpsychology: Journal of Psychosocial Research on Cyberspace 2023;17(5) View
  58. Monks-Woods A, Andriopoulou P, Grogan S. A Phenomenological Investigation of Experiences of People Who Use YouTube to Access Support for Borderline Personality Disorder. Psychological Studies 2024;69(1):135 View
  59. Alwuqaysi B, Abdul-Rahman A, Borgo R. The Impact of Social Media Use on Mental Health and Family Functioning Within Web-Based Communities in Saudi Arabia: Ethnographic Correlational Study. JMIR Formative Research 2024;8:e44923 View
  60. Abdulai A, Naghdali H, Noga H, Yong P. Patient-Centered Approaches for Designing Destigmatizing Sexual Pain-Related Web-Based Platforms: Qualitative Study. JMIR Formative Research 2024;8:e53742 View
  61. Van Meter A, Agrawal N. LovesCompany: evaluating the safety and feasibility of a mental health-focused online community for adolescents. Journal of Child & Adolescent Mental Health 2024;34(1-3):83 View
  62. Ibrahim S, Ang J, Petsolari M, Michelson R, Dong Y, Theofanopoulou N, Van Kleek M, Davis K, Slovák P. Understanding Online Parental Help-Seeking and Help-Giving in Early Childhood: The Design Challenges of Supporting Complex Parenting Questions. Proceedings of the ACM on Human-Computer Interaction 2024;8(CSCW1):1 View

Books/Policy Documents

  1. Hodkinson P, Das R. New Fathers, Mental Health and Digital Communication. View
  2. Hamlyn A, Farahmand P. Teens, Screens, and Social Connection. View
  3. Oti O, Pretorius C, Pitt I. ICT for Health, Accessibility and Wellbeing. View
  4. De Cock B, Figueras Bates C. A Pragmatic Agenda for Healthcare. View
  5. Chen X, Wan Yahaya W. Embracing Cutting-Edge Technology in Modern Educational Settings. View
  6. Maíz-Arévalo C. The Power of Self-Presentation. View
  7. Yip J. Discourse of Online Social Support. View
  8. Yip J. Discourse of Online Social Support. View
  9. Ghozali M. The Palgrave Encyclopedia of Disability. View