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Strategies to Implement a Community-Based, Longitudinal Cohort Study: The Whole Communities-Whole Health Case Study

Strategies to Implement a Community-Based, Longitudinal Cohort Study: The Whole Communities-Whole Health Case Study

A large part of achieving this is through the WCWH cohort study, which involves working with families living in the Eastern Crescent of Austin, Texas, over a 5-year period. Between August 2021 and December 2021, the idea became a reality as WCWH worked with the first 15 families (the “ambassador families”) to review and refine the data collection protocols.

Lindsay Bouchacourt, Sarah Smith, Michael Mackert, Shoaa Almalki, Germine Awad, Amanda Barczyk, Sarah Kate Bearman, Darla Castelli, Frances Champagne, Kaya de Barbaro, Shirene Garcia, Karen Johnson, Kerry Kinney, Karla Lawson, Zoltan Nagy, Laura Quiñones Camacho, Lourdes Rodríguez, David Schnyer, Edison Thomaz, Sean Upshaw, Yan Zhang

JMIR Form Res 2024;8:e60368

Evaluating a Mobile App Supporting Evidence-Based Parenting Skills: Thematic Analysis of Parent Experience

Evaluating a Mobile App Supporting Evidence-Based Parenting Skills: Thematic Analysis of Parent Experience

The analysts who contributed to the thematic analysis and editing of the brief case studies, PW and JLS, had limited previous contact with these particular families but were involved in developing the app so they contributed a more technology-focused perspective than NH. DG was not directly involved in data collection or analysis or software development so he provided a different set of perspectives. In total, 11 parents of 33 children were included.

Nathan Hodson, Peter Woods, Juan Luque Solano, Charlotte Talbot, Domenico Giacco

JMIR Pediatr Parent 2024;7:e53907

Acceptance of a French e–Mental Health Information Website (CléPsy) for Families: A Web-Based Survey

Acceptance of a French e–Mental Health Information Website (CléPsy) for Families: A Web-Based Survey

In line with this goal of supporting children and their families, we launched a website in March 2020, intended for families of children with MH disorders in the context of the first French lockdown during the COVID-19 pandemic. This website provides evidence-based knowledge on MH topics, practical tool kits, and know-how to deal with children’s everyday difficulties.

Benjamin Landman, Elie Khoury, Alicia Cohen, Vincent Trebossen, Alexandre Michel, Aline Lefebvre, Richard Delorme

JMIR Pediatr Parent 2024;7:e50978

Leveraging Feedback From Families of Children With Autism to Create Digital Support for Service Navigation: Descriptive Study

Leveraging Feedback From Families of Children With Autism to Create Digital Support for Service Navigation: Descriptive Study

For example, families of children with autism who are low-income are significantly less likely than high-income families to: receive care from a specialist; have a personal doctor; receive timely, acute care; and visit a doctor for preventive care [14]. Also, families of children with autism who are low-income are almost 3 times more likely than high-income families to struggle to obtain advice about services [15].

Meghan Burke, Chak Li, Waifong Catherine Cheung, Adriana Kaori Terol, Amanda Johnston, Stephen M Schueller

JMIR Form Res 2024;8:e56043

Design of Digital Mental Health Platforms for Family Member Cocompletion: Scoping Review

Design of Digital Mental Health Platforms for Family Member Cocompletion: Scoping Review

Most interventions (14/24, 58%) were designed for cocompletion by couples, with some identified interventions for parent-child dyads (6/24, 25%), families (2/24, 8%), and caregiver–care recipient dyads (2/24, 8%).

Ellen T Welsh, Jennifer E McIntosh, An Vuong, Zoe C G Cloud, Eliza Hartley, James H Boyd

J Med Internet Res 2024;26:e49431

Sentiment Analysis of Patient- and Family-Related Sepsis Events: Exploratory Study

Sentiment Analysis of Patient- and Family-Related Sepsis Events: Exploratory Study

Within the context of sepsis, understanding the emotional experiences of patients and their families during sepsis events is crucial for providing holistic and patient-centered care. Although there is a lack of extensive research on the emotional experiences of patients and their families, specifically during sepsis events, studies conducted in related fields highlight the crucial role of emotional support and its impact on patient outcomes [4].

Mabel Ntiamoah, Teenu Xavier, Joshua Lambert

JMIR Nursing 2024;7:e51720

Refining Cultural Adaptations of a Behavioral Intervention for Latino Caregivers of People Living With Dementia: Qualitative Interview Study in Washington State

Refining Cultural Adaptations of a Behavioral Intervention for Latino Caregivers of People Living With Dementia: Qualitative Interview Study in Washington State

Latino caregivers of people living with dementia are at an increased risk of experiencing adverse health impacts due to caregiving, yet few evidence-based interventions have been developed to support Latino families [1]. In the United States, Latino adults are 1.5 times more likely to develop Alzheimer disease and related dementias (ADRD) compared to non-Latino White adults [2].

Celeste N Garcia, Miriana C Duran, Magaly Ramirez

JMIR Aging 2024;7:e53671

Development of an App for Tracking Family Engagement With Early Intervention Services: Focus Groups and Pilot Evaluation Study

Development of an App for Tracking Family Engagement With Early Intervention Services: Focus Groups and Pilot Evaluation Study

Mobile apps may also mitigate the barriers encountered by using traditional means of contacting families. For example, phone calls may be intrusive or inconvenient for families in comparison with prompts sent via text or apps. Questionnaires sent via mail or email are often lengthy, redundant, and usually cannot be personalized for individual families, whereas mobile apps offer the potential for brief, targeted prompts that can be personalized based on past user responses.

Liliana Wagner, Laura Corona, Nibraas Khan, Madison Hooper, Alexa Dixon, Ambar Munoz Lavanderos, Zhaobo Zheng, Nandan Sarkar, Nilanjan Sarkar, Zachary Warren

JMIR Hum Factors 2023;10:e45957

Moderated Online Social Therapy for Carers of Early Psychosis Clients in Real-World Settings: Cluster Randomized Controlled Trial

Moderated Online Social Therapy for Carers of Early Psychosis Clients in Real-World Settings: Cluster Randomized Controlled Trial

Given the age of onset, families are the mainstay of informal care in early psychosis. A warm family environment is an important protective factor during recovery [8]; however, the burden of caring for a family member with early psychosis is associated with elevated distress [9]. As highlighted by the World Health Organization (WHO), the impacts upon caregivers warrant the dissemination of these effective family interventions for the benefit of both carers and the young person experiencing psychosis [10].

John Gleeson, Ashleigh Lin, Peter Koval, Liza Hopkins, Paul Denborough, Reeva Lederman, Helen Herrman, Sarah Bendall, Dina Eleftheriadis, Sue Cotton, Yael Perry, Michael Kaess, Mario Alvarez-Jimenez

JMIR Ment Health 2023;10:e47722