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The prevalence of ADRD is higher among African American individuals, leading to a disproportionately more significant share of the family caregiving burden. Approximately one-third of these caregivers of individuals living with dementia acknowledge postponing or neglecting their health due to their caregiving role [1]. Given African American individuals’ heightened risk of ADRD, particularly vascular and mixed dementia, this problem disproportionately affects African American family caregivers [1].
JMIR Res Protoc 2025;14:e66975
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They must interpret medical jargon, simplify it for their child, and act as intermediaries with health care providers, all while managing the emotional strain of caregiving and the cognitive load of understanding complex medical information. This burden can increase stress, reduce caregiving effectiveness, and impact family well-being. Low parental health literacy further compounds these challenges, as it is linked to medical errors and poorer health outcomes for children [17-24].
JMIR Form Res 2025;9:e63818
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Furthermore, through remarkably improved emotional and cognitive support by virtue of generative AI technology, the chatbot is capable of delivering empathetic responses and practical caregiving strategies without requiring constant caregiver input. This makes it a more autonomous and complete tool for addressing the emotional, cognitive, and practical demands of dementia caregiving.
In the following, we describe in detail the construction of the PDC30 Chatbot and its acceptability from a user perspective.
JMIR Aging 2025;8:e63715
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Surprisingly, caregiving costs are frequently not included in pediatric economic models despite the central nature of direct caregiving activities to children’s health [10,11]. A 2023 systematic review assessing the inclusion of family spillover impacts in pediatric cost-utility analysis found that out of 878 pediatric cost-utility analyses, only 35 included any family spillover effects within the model development [11].
J Particip Med 2024;16:e60666
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AD/ADRD can present with a broad set of behavioral and medical symptoms across an extended time period, contributing to the challenges of caregiving [1,11,12]. Yet, caregivers often remain underresourced and overburdened due to the complexity of AD/ADRD care [7].
JMIR Aging 2024;7:e67992
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Technologically driven interventions could address the mental health sequelae of caregiving [46-48].
JMIR Form Res 2024;8:e63041
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We focused our analysis on a specific subset of forums that are dedicated to ADRD caregivers who share caregiving experiences, seek assistance, and engage in caregiving discussions. To ensure relevance and coherence, we conducted a preliminary selection process, manually reviewing the top 20 most viewed or commented posts within each relevant forum to assess their alignment with caregiving topics.
JMIR Aging 2024;7:e60050
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Likewise, stress from caregiving for older adults with chronic health conditions impacts everyday routines and behaviors such as sleep and physical activity. Detecting and differentiating these subtle changes is ideally pursued in the home setting, where older adults perform their regular daily routines and demonstrate their functional capacity in ecologically valid ways.
J Med Internet Res 2024;26:e54709
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The experiment also aims to assess the effectiveness of the web-based support program, and to explore its impact on the caregiving burden and caregiving abilities of dementia caregivers, compared with dementia caregivers who receive routine caregiving interventions after discharge. The primary outcomes of this study consisted of evaluating the severity of neuropsychiatric symptoms in patients with dementia, assessing the burden on caregivers, and gauging the capability of caregivers.
JMIR Aging 2024;7:e50847
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Ascertaining Out-of-Pocket Costs of Dementia Care: Feasibility Study of a Web-Based Weekly Survey
The primary aim was to determine the feasibility and acceptability of using a novel method to ascertain out-of-pocket costs associated with dementia care: a web-based weekly survey to capture real-time data on caregiving expenses and time commitments completed by care partners. Feasibility was measured by accrual, retention, and data completion.
JMIR Form Res 2024;8:e56878
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