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For privacy reasons, the data cannot be made public, but data access can be requested at the institutes implementing the cohort studies (MC: Center for Longitudinal Studies of the University College London; Ki GGS cohort: Department of Epidemiology and Health Monitoring of the Robert Koch Institute).
JMIR Public Health Surveill 2025;11:e60125
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Assessing the Utilization of Electronic Consultations in Genetics: Seven-Year Retrospective Study
JMIR Form Res 2025;9:e63028
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Dyads of parents and transplant providers caring for a child awaiting a heart, liver, or kidney transplant were recruited from the Children’s Hospital Colorado, Ann and Robert H. Lurie Children’s Hospital, and the Children’s Hospital of Philadelphia via an in-clinic, email, or electronic medical record (EMR) invitation. Parents of a child being transplanted for acute organ failure or retransplantation were excluded.
JMIR Form Res 2025;9:e68855
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