TY  - JOUR
AU  - Nielsen, Martine Stecher
AU  - Steinsbekk, Aslak
AU  - Nøst, Torunn Hatlen
PY  - 2024
DA  - 2024/6/6
TI  - Development of Recommendations for the Digital Sharing of Notes With Adolescents in Mental Health Care: Delphi Study
JO  - JMIR Ment Health
SP  - e57965
VL  - 11
KW  - electronic health record
KW  - EHR
KW  - electronic health records
KW  - EHRs
KW  - electronic medical record
KW  - EMR
KW  - electronic medical records
KW  - EMRs
KW  - patient record
KW  - health record
KW  - health records
KW  - personal health record
KW  - PHR
KW  - online access to electronic health records
KW  - open notes
KW  - clinical notes
KW  - adolescent mental health care
KW  - adolescent mental health
KW  - child mental health
KW  - mental health
KW  - mental illness
KW  - mental illnesses
KW  - mental disorder
KW  - mental disorders
KW  - recommendations
KW  - Delphi study
KW  - digital mental health
KW  - e-health
KW  - eHealth
KW  - e–mental health
KW  - health care professionals
KW  - digital health care
AB  - Background: In many countries, health care professionals are legally obliged to share information from electronic health records with patients. However, concerns have been raised regarding the sharing of notes with adolescents in mental health care, and health care professionals have called for recommendations to guide this practice. Objective: The aim was to reach a consensus among authors of scientific papers on recommendations for health care professionals’ digital sharing of notes with adolescents in mental health care and to investigate whether staff at child and adolescent specialist mental health care clinics agreed with the recommendations. Methods: A Delphi study was conducted with authors of scientific papers to reach a consensus on recommendations. The process of making the recommendations involved three steps. First, scientific papers meeting the eligibility criteria were identified through a PubMed search where the references were screened. Second, the results from the included papers were coded and transformed into recommendations in an iterative process. Third, the authors of the included papers were asked to provide feedback and consider their agreement with each of the suggested recommendations in two rounds. After the Delphi process, a cross-sectional study was conducted among staff at specialist child and adolescent mental health care clinics to assess whether they agreed with the recommendations that reached a consensus. Results: Of the 84 invited authors, 27 responded. A consensus was reached on 17 recommendations on areas related to digital sharing of notes with adolescents in mental health care. The recommendations considered how to introduce digital access to notes, write notes, and support health care professionals, and when to withhold notes. Of the 41 staff members at child and adolescent specialist mental health care clinics, 60% or more agreed with the 17 recommendations. No consensus was reached regarding the age at which adolescents should receive digital access to their notes and the timing of digitally sharing notes with parents. Conclusions: A total of 17 recommendations related to key aspects of health care professionals’ digital sharing of notes with adolescents in mental health care achieved consensus. Health care professionals can use these recommendations to guide their practice of sharing notes with adolescents in mental health care. However, the effects and experiences of following these recommendations should be tested in clinical practice. 
SN  - 2368-7959
UR  - https://mental.jmir.org/2024/1/e57965
UR  - https://doi.org/10.2196/57965
DO  - 10.2196/57965
ID  - info:doi/10.2196/57965
ER  -