@Article{info:doi/10.2196/21208,
author="Ivanova, Julia
and Tang, Tianyu
and Idouraine, Nassim
and Murcko, Anita
and Whitfield, Mary Jo
and Dye, Christy
and Chern, Darwyn
and Grando, Adela",
title="Behavioral Health Professionals' Perceptions on Patient-Controlled Granular Information Sharing (Part 1): Focus Group Study",
journal="JMIR Ment Health",
year="2022",
month="Apr",
day="20",
volume="9",
number="4",
pages="e21208",
keywords="behavioral health professional; granular information; granular information sharing; electronic health record; integrated health care; electronic consent tool",
abstract="Background: Patient-controlled granular information sharing (PC-GIS) allows a patient to select specific health information ``granules,'' such as diagnoses and medications; choose with whom the information is shared; and decide how the information can be used. Previous studies suggest that health professionals have mixed or concerned opinions about the process and impact of PC-GIS for care and research. Further understanding of behavioral health professionals' views on PC-GIS are needed for successful implementation and use of this technology. Objective: The aim of this study was to evaluate changes in health professionals' opinions on PC-GIS before and after a demonstrative case study. Methods: Four focus groups were conducted at two integrated health care facilities: one serious mental illness facility and one general behavioral health facility. A total of 28 participants were given access to outcomes of a previous study where patients had control over medical record sharing. Participants were surveyed before and after focus groups on their views about PC-GIS. Thematic analysis of focus group output was paired with descriptive statistics and exploratory factor analysis of surveys. Results: Behavioral health professionals showed a significant opinion shift toward concern after the focus group intervention, specifically on the topics of patient understanding (P=.001), authorized electronic health record access (P=.03), patient-professional relationship (P=.006), patient control acceptance (P<.001), and patient rights (P=.02). Qualitative methodology supported these results. The themes of professional considerations (2234/4025, 55.5{\%} of codes) and necessity of health information (260/766, 33.9{\%}) identified key aspects of PC-GIS concerns. Conclusions: Behavioral health professionals agreed that a trusting patient-professional relationship is integral to the optimal implementation of PC-GIS, but were concerned about the potential negative impacts of PC-GIS on patient safety and quality of care. ",
issn="2368-7959",
doi="10.2196/21208",
url="https://mental.jmir.org/2022/4/e21208",
url="https://doi.org/10.2196/21208",
url="http://www.ncbi.nlm.nih.gov/pubmed/35442199"
}