In light of the uptick in telemedicine, with social distancing measures in place, patients and clinicians have been compelled to rapidly navigate new modes of visits, and it is not yet known whether the quality of patient-clinician communication has been affected. Against these uncertainties, there is compelling evidence that open notes may help strengthen clinician-patient exchanges [9]. Large-scale online surveys conducted prior to the pandemic show that when patients can readily access their notes they better understand and remember their care plan, including the reasons why treatments have been prescribed and when (and why) referrals and follow-up appointments are scheduled [13,14].

During the pandemic, when many face-to-face ambulatory visits are still delayed or not possible, caregivers have faced considerable challenges in supporting family and friends. Unable to accompany patients to clinical visits or see loved ones in the hospital, they have lost important opportunities to find out what is going on and to fully participate in care. However, open notes may help to close this information gap. In studies, considerable numbers of patients report sharing notes with others [13]. Such access may be even more important for older adult patients or those who rely on care partners by helping them, and their carers, to understand treatment plans and to remember to access test results or follow up with referrals.

Open notes could also play a crucial role in closing the chasm of health disparities further deepened by COVID-19 [15]. Compared with White patients, Black, Hispanic, and Asian patients in the United States are more likely to report that reading their notes enhances trust in their doctors. In surveys, historically marginalized patients such as those who identify with an ethnic or racial minority group, persons with lower incomes, those with fewer years of formal education, or those whose first language differs from their clinician are the most enthusiastic about open notes when they log in to portals [16,17]. On the other hand, the “digital divide” in health care—driven by lack of broadband internet access [18], lack of email address or use, and low digital literacy—remains a barrier to the adoption of patient portals among these patient populations [19]. Although there is evidence this digital divide is narrowing, with greater commitment to safety net interventions such as patient outreach programs or the distribution of WiFi-enabled tablets, patients who have the most to gain from reading their notes could reap the benefits.

COVID-19 has taken a toll on mental health. However, patients with anxiety or depression who read their notes may benefit from better understanding their clinicians’ recommendations, helping them to stay on track with their care plan. In a large-scale survey of nearly 20,000 patients prescribed medications, 14% of patients who accessed their notes reported doing a better job adhering to their medications [20]. For patients with mental health diagnoses the figures were higher: 20% of patients with serious mental illnesses such as major depression, bipolar disorders, or schizophrenia and 18% of patients with other mental health diagnoses said they were more likely to take their prescribed medications after reading their clinical notes [14]. Preliminary findings from psychotherapy also show that open notes can improve the therapeutic alliance between patients and therapists, help build trust, and deepen patients’ understanding about what goes on in therapy sessions [21].

Patients experiencing symptoms of long COVID may feel marginalized or uncertain about their health care. In multiple surveys, patients who access open notes report feeling more empowered and engaged with managing their health [13,22,23]. As an asynchronous communication tool, open notes can serve as an online extension of the visit, helping improve a sense of control and engagement with care. This may be especially important for offering reassurance to patients with long COVID whose symptoms are still poorly understood [24,25].

Working under the considerable pressures wrought by the pandemic, it is not yet known whether patient safety has been negatively affected by human error [9]. Studies conducted prior to the pandemic show that around 1 in 5 patients who read their notes can, and do, perceive errors [26]. With more eyes on the charts, patients can help clinicians to correct inaccuracies or omissions and improve the feedback loop in care—all the more essential as a patient safety mechanism when routines have been disrupted and clinicians and patients are laboring under high levels of stress.