Published on 06.07.20 in Vol 7, No 7 (2020): July
Preprints (earlier versions) of this paper are available at http://preprints.jmir.org/preprint/19246, first published Apr 09, 2020.
Digital Health Management During and Beyond the COVID-19 Pandemic: Opportunities, Barriers, and Recommendations
During the coronavirus disease (COVID-19) crisis, digital technologies have become a major route for accessing remote care. Therefore, the need to ensure that these tools are safe and effective has never been greater. We raise five calls to action to ensure the safety, availability, and long-term sustainability of these technologies: (1) due diligence: remove harmful health apps from app stores; (2) data insights: use relevant health data insights from high-quality digital tools to inform the greater response to COVID-19; (3) freely available resources: make high-quality digital health tools available without charge, where possible, and for as long as possible, especially to those who are most vulnerable; (4) digital transitioning: transform conventional offline mental health services to make them digitally available; and (5) population self-management: encourage governments and insurers to work with developers to look at how digital health management could be subsidized or funded. We believe this should be carried out at the population level, rather than at a prescription level.
JMIR Ment Health 2020;7(7):e19246
Although we maintain behaviors that limit the spread of the coronavirus disease (COVID-19), we must also ensure that measures are in place to prevent, or at least mitigate, the risks of individuals being harmed in other ways.
Before COVID-19, mental health and social services were already stretched. Depression is the second leading cause of disability worldwide, and by 2030, it is expected to be the leading contributor to the global burden of disease . Efforts to contain the spread of COVID-19, including prolonged social distancing and self-isolation, may trigger or exacerbate social, mental, and physical health problems, such as anxiety, relationship breakdowns, domestic violence, substance abuse or withdrawal, and obesity [ - ]. This could be especially serious for those with comorbid medical and psychological conditions [ ].
During the COVID-19 crisis, digital technologies have become a major route for accessing mental health care. Therefore, the need to ensure that these tools are safe and effective has never been greater. We raise five calls to action to ensure the safety, availability, and long-term sustainability of these technologies: (1) due diligence: remove harmful health apps from app stores; (2) data insights: use relevant health data insights from high-quality digital tools to inform the greater response to COVID-19; (3) freely available resources: make high-quality digital health tools available without charge, where possible and for as long as possible, especially to those who are most vulnerable; (4) digital transitioning: transform conventional offline mental health services to make them digitally available; and (5) population self-management: encourage governments and insurers to work with developers to look at how digital health management could be subsidized or funded. We believe this should be carried out at the population level, rather than at a prescription level.
Action 1: Due Diligence
During this time of heightened health anxiety, poorly designed (or novelty) apps that give inaccurate or misleading information can do more harm than good, such as nudging inappropriate health-related behaviors, compromising access to necessary care, or having other negative unforeseen consequences. We call on app stores to take expert advice on which apps might undermine standard clinical practices and subsequently remove apps posing health risks. For example, there are “prank” blood pressure apps that give inaccurate, randomly generated readings to millions of users  and suicide and depression apps, which have been downloaded over 2 million times, that provide wrong or nonexistent information about suicide crisis helpline support [ ].
Action 2: Data Insights
We must consider data insights from high-quality digital health tools wherever possible to support the greater response to COVID-19. For example, an international team is working with multiple digital service providers to document the scale and nature of the mental health impact of COVID-19 . We briefly highlight some changes in user interactions that have already been observed by Wysa [ ] and MeeTwo [ ] ( ). Wysa is an artificial intelligence–enabled chat-based, self-management resource that has been downloaded almost 2 million times worldwide, and is the current top recommendation of the National Health Service (NHS) and the Organisation for the Review of Care and Health Apps [ ] for mental health and wellness. MeeTwo is a fully-moderated, anonymous peer support app currently supporting 25,000 young people aged 11-25 throughout the United Kingdom and is part of the NHS Apps Library. Another more specialized app called distrACT [ ], which offers information and support to people who self-harm and may feel suicidal that is also included in the NHS Apps Library, has not observed substantial changes in patterns of user interactions at the time of writing.
Action 3: Freely Available Resources
The physical and mental demands on frontline care professionals puts them at increased risk of illnesses and death . At this crucial time, we call for digital service providers to offer free tools and open access to services wherever possible. Some digital health providers have already made tools and resources freely available for health care workers, and some providers are offering certain resources freely for all of their users. This comes with a note of caution, however, as NHSX has received over 400 free platform offers, but many offerings are only for a short duration. A sudden removal of digital support can pose risks, such as creating dependency for patients, unclear expectations for care providers, or financial uncertainty. Therefore, we call on companies to strive to offer support for the full duration of need, which may extend beyond the immediate public health crisis. Furthermore, future approval of apps for health care use might take into consideration whether the digital tool could be made freely available during public health crises, and beyond, as needed.
Action 4: Digital Transitioning
COVID-19 has led to nonessential staff working from home. NHSX recently published guidance to relax the rules around using digital communication tools to maintain therapeutic connections with patients. We call for training in digital health support to be incorporated into the curriculum for health professionals. We also call for conventional supportive services to be made available digitally, for example, sustaining services like Improving Access to Psychological Therapies (IAPT) given its reduced capacity, partly due to the redeployment of staff to newly established crisis care lines. As an example of this digital transitioning process, the Central and North West London Mental Health NHS Trust has established a protocol of good practice to transition from face-to-face art therapies to tele-art psychotherapies that also monitor physical care as part of the therapy .
Action 5: Population Self-Management
We need more reimbursements or subsidizations for cost-effective preventive and self-management interventions for mental health at the population level rather than at a prescription level. A triage phone call to IAPT services costs approximately £100 (approximately US $125). Before COVID-19, two-thirds of callers were reported as inappropriate referrals . Technologies that can support self-management and self-assessment could save governments money while directing expensive medical resources to those who need them most.
To summarize, we have identified some pressing issues, with actions that could address them; however, these are by no means comprehensive and come with uncertainties and risk (eg, gaining consensus as to what constitutes a list of acceptable apps, maintaining data security, and obtaining patient consent). Other effective and safe digital services could also be rapidly implemented (eg, virtual visiting for loved ones, especially for end-of-life patients). We also encourage stakeholders to consider the importance of managing screen time (eg, using voice recognition). Digital health is a priority area for widening reach and providing timely assistance. At a time of immense strain, we must supplement health care systems with digital health management support, and we must strive to reduce the risks that create additional burdens.
We are grateful for comments made by Associate Professor Glenn Melvin, Faculty of Health, Deakin University, Australia; Jenny Edwards CBE, FFPH, United Kingdom; and Associate Professor Gerry Craigen, Department of Psychiatry, Faculty of Medicine, University of Toronto and Associate Attending Staff Psychiatrist, Department of Psychiatry, University Health Network, Toronto General Hospital.
BI formulated the notion to write about this topic and invited all coauthors to join, all of whom have made important contributions in the form of literature searches, idea generation, writing, and editing.
Conflicts of Interest
BI is an advisor for Wysa. RO has no conflicts of interest. ES is a clinical safety officer at Wysa. SJ is a lead psychologist at Wysa. VS is a research and compliance officer at Wysa. MK is a data scientist at Wysa. KS is the director of Expert Self Care Ltd (distrACT app). SG and KC are cofounders of MeeTwo. SV has received funding from iqvia for toolbox development. BM has no conflicts of interest.
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|COVID-19: coronavirus disease|
|IAPT: Improving Access to Psychological Therapies|
|NHS: National Health Service|
Edited by G Eysenbach; submitted 09.04.20; peer-reviewed by J D'Arcey, C Basch; comments to author 16.04.20; revised version received 28.05.20; accepted 01.06.20; published 06.07.20
©Becky Inkster, Ross O’Brien, Emma Selby, Smriti Joshi, Vinod Subramanian, Madhura Kadaba, Knut Schroeder, Suzi Godson, Kerstyn Comley, Sebastian J Vollmer, Bilal A Mateen. Originally published in JMIR Mental Health (http://mental.jmir.org), 06.07.2020.
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